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HAE AFRICA

Welcome

Hereditary Angio-Edema Africa is an educational forum for patients, caregivers, physicians and other stakeholders in the Sub Sahara Region seeking to bring more awareness on hereditary angio edema which is a rare and potentially fatal condition caused by C1 esterase inhibitor deficiencies in the human body.

Feel free to register with us to get more information from our global newsletters and invitations for our upcoming events and discussions on hereditary angio edema in the Sub Sahara.

Regional Patient Advocate, HAEi

Become a member of HAE Africa

Benefits of becoming a member

Connect and link with other patients living with hereditary angioedema in the Sub Sahara region

Online support for patients and families of those living with hereditary angioedema

Updates on upcoming events on angioedema in the Sub Sahara region

Access to information on what is happening around the globe on hereditary angioedema

HAE related events in the region

12th April 2024: First in-person meeting for HAE in Mozambique

The meeting was held in the Orange Corners Mozambique and it attracted activists, patients , caregivers, doctors as well as representatives from the Ministry of HEalth and the Mozambican Association of Rare Diseases.

“It was a supper good and extremely important and edifying for those who were there, we had an exhaustive explanation with Andrea about what it is HAE, symptoms and treatment….It was an impactful meeting and from there we were sure that there is alot to be done in our country”

-Victor Fernando Manjate-

24th May 2021: 1st doctors Seminar on Diagnostic approach to Angio-edema and hereditary angioedema and management in collaboration with Rare Disease Ghana Initiative.

June 2019: 2nd HAE African Doctors Symposium, Kigali, Rwanda

April 2019: ASID Congress held in Dakar, Senegal. Read more….

October 2018 : Allergy Society of Kenya (ASOK) Biennial Scientific Conference held in Nairobi

April 2018: Kenya Pediatrics Association (KPA) Scientific Conference

February 2018: Hereditary Angio-edema Kenya Doctors Seminar

April 2019: ASID Congress held in Dakar, Senegal. Read more….

October 2018 : Allergy Society of Kenya (ASOK) Biennial Scientific Conference held in Nairobi

April 2018: Kenya Pediatrics Association (KPA) Scientific Conference

February 2018: Hereditary Angio-edema Kenya Doctors Seminar

March 2019: Upcoming Patient Meeting in South Africa will be held in Cape Town.

This meeting has been organized by HAE South Africa in collaboration with HAE international and The Lung Institute, UCT on the 14th March 2019.

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