HAEi was able to raise awareness in the 6th ASID Congress held in Dakar, Senegal from the 11th to 13th April 2019. Awareness was raised among health care professionals who had come in from all over Africa. Awareness on hereditary angioedema and the challenges faced by patients and also by doctors in the diagnosis [...]
Today May 16th is HAE Day celebrated all over the world to raise awareness on hereditary angioedema which is a rare and life threatening condition. Join us as we celebrate the lives of those patients who are living with this condition in their daily lives and also to celebrate the lives of those we [...]
Hereditary angioedema is characterized by huge massive swellings that spontaneously occur on the body lasting up to five days and causing serious disability and potentially life threatening if manifestations are in the laryngeal area. If you experience such symptoms please go and get your C1 esterase inhibitor levels as well as your C4 esterase [...]
Most symptoms of hereditary angioedema manifest during childhood. It is very importnat to be more aware of these symptoms in children to ensure proper medication and therapy is achieved. Read more on this here....
We have set out a new awareness campaign called "Voice of the voiceless". This is a campaign to empower patients to speak out about their conditions and help others seek proper diagnosis of angioedema.
Hereditary angioedema is an inherited condition that passes down form one generation of family to the next. It is important to ensure that your family members are tested for HAE to ensure they are aware and can seek appropriate treatment as early as possible as well as better management of the condition. [...]